Pharma & Life Sciences

World Orphan Drug Congress Europe 2026

Official websiteRegisterAgenda
6 weeks until it opens.

The essentials

Event details

Dates
26 October 2026 to 28 October 2026
Location
RAI Amsterdam Convention Centre, Amsterdam, Netherlands
Organiser
Terrapinn
Expected attendance
2,973
Industry
Pharma & Life Sciences

Public discussion

What people are saying

Official hashtag #worldorphandrugcongress

  • PressWorld Orphan Drug Congress Europe 2026 - Amsterdam, Netherlands

    World Orphan Drug Congress Europe 2026 in Amsterdam, Netherlands, is a leading healthcare and pharmaceutical event focused on rare disease treatments, orphan drug development, clinical research, and innovative solutions connecting industry

    eurotravelo.com

  • PressWorld Orphan Drug Congress Europe 2026 - IRDiRC

    The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress Europe 2026, highlighting innovations in rare disease research, personalized therapies, and sustainable approaches to

    irdirc.org

Agenda themes

Topics covered

  • Drug

On stage

Speakers

  • Alexander NatzSecretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
  • Clara van KarnebeekAmsterdam UMC, Amsterdam NL
  • Fabienne BartoliInspector General, French National Authority for Health
  • Stine Bosse
  • Niklas HedbergHead Of Pharmacy, Tandvards och Lakemedelsformansverket
  • Kaja Kantorska
  • Jonathan NealTakeda
  • Francesc PalauDistinguished Investigator
  • Violeta Stoyanova-Beninska
  • Derek AnselVice President, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials
  • Lara Bloom
  • Peter FasslerDirector Market Access, Gilead Sciences
  • Josie GodfreyVice President, Market Access & Pricing, Europe and International, Ascendis Pharma
  • Ron JortnerFounder & CEO, Aspire Biosciences
  • Daria JulkowskaHead of Strategy & Partnerships in Health, ERDERA - INSERM
  • Paolo MorgeseVice President, Public Affairs, Europe, Alliance for Regenerative Medicine
  • Josephine MossetSenior Policy Officer, Cancer Patients Europe
  • Frauke Naumann-WinterHead of Unit, BfArM
  • Maurizio ScarpaDirector, Coordinating Center For Rare Diseases, MetabERN
  • Lydia Shotton
  • Kwee Lan TANHead of team, Boehringer Ingelheim
  • Veronica Lopez GoussetDrPH candidate, Harvard T.H. Chan School of Public Health
  • Viviana GiannuzziSenior Director, Head of Europe Global Regulatory & Scientific, Merck
  • Dariusz AdamczewskiManaging Director, Children’s Tumor Foundation Europe

On the floor

Sponsors and partners

  • CENTOGENE GmbH
  • Staatz Consulting
  • Chiesi Global Rare Diseases
  • ICON Clinical Research Ltd
  • OXON EPIDEMIOLOGY
  • PrimeVigilance
  • RTI Health Solutions
  • PANTHERx Rare
  • Premier Research
  • SGS Integrated CDMO Solutions
  • subrosa Health & Capital
  • Norgine
  • Sciensus Pharma Services Limited
  • York Health Economics Consortium
  • Alchemist Consulting Ltd
  • Genontech Digital Health Solutions Ltd
  • Innvocept Global Solutions
  • ERDERA
  • FH Europe Foundation NGO
  • RARE Revolution
  • ODDIFACT
  • Infirmacea Inc
  • NIXI DESIGN FOR HEALTH SL
  • Olavide Neuron STX (ONESTX)

Logistics

Where to stay

Places to stay near the venue.

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